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Welcome to the Beckwith-Wiedemann syndrome (BWS) Registry website at the Washington University School of Medicine.
This website was designed both for families and physicians who care for children with BWS. While we do not directly offer any clinical services through this website, we hope that the educational information provided about BWS and our research is helpful.
The BWS Registry is a database of information collected from generous families affected by this congenital overgrowth syndrome. Through the BWS Registry and associated studies, we hope to better understand the causes of BWS and how to best clinically manage it.
We graciously thank all the families who have joined the BWS Registry and have participated in our research. These individuals are truly helping to advance scientific knowledge and improve the management of BWS.
Please browse our website by clicking on the sections below to learn more about BWS, the Registry, and our work.
ABOUT BWS
Basic information about BWS, including information about the genetics and the management of the syndrome.
BWS REGISTRY - THE REGISTRY IS NOW OPEN
Overview of the BWS Registry and our research. Interested families can join the Registry through the website.
FAQ
Answers to frequently asked questions about BWS in general, the Registry, and our research findings.
LINKS
Other BWS websites.
CONTACT
Information about our research team.
This website is funded by Dr. Andrew Feinberg's grant 5R37CA054358-18 and by the Burroughs Wellcome Foundation grant.
Last Modification: 04/15/2009
Visits to this page since 08/04/2008: 8655 |